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13-year-old Benjamin Siedman has Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben and thousands of children afflicted like him have a life expectancy between 12 and 20 years. There is no treatment. There is no cure . . . Only hope.Right now Doctors can do little for Sanfilippo's symptoms and nothing to stop the catastrophic regression Ben faces. That is why we created the Sanfilippo Research Foundation. Our mission is to promote awareness and raise funds to support research aimed at finding a cure so Benjamin and his friends can realize their dreams. We invite you to explore our website to learn more about Benjamin, Sanfilippo Syndrome, the Foundation, our efforts and how you can help.
Voting has ended - Thank you - 4 Joey! ![]() ![]() Click to see our submission Privacy Statement Questions regarding this website should be directed to info@bensdream.org Copyright © 2001-2010 Ben's Dream & Sanfilippo Research Foundation. All rights reserved. Last modified: January 30, 2010. www.bensdream.org is sponsored by |
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