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11-year-old Benjamin Siedman has been diagnosed with Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben and thousands of children afflicted like him have a life expectancy between 10 and 15 years. There is no treatment. There is no cure . . . Only hope.Right now Doctors can do little for Sanfilippo's symptoms and nothing to stop the catastrophic regression Ben faces. That is why we created the Sanfilippo Research Foundation. Our mission is to promote awareness and raise funds to support research aimed at finding a cure so Benjamin and his friends can realize their dreams. We invite you to explore our website to learn more about Benjamin, Sanfilippo Syndrome, the Foundation, our efforts and how you can help.
Questions regarding this website should be directed to info@bensdream.org Copyright © 2001-2007 Ben's Dream & Sanfilippo Research Foundation. All rights reserved. Last modified: November 5, 2007. www.bensdream.org is sponsored by |
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