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In the News Channel 4 story Channel 38 story 6/16/2002 - Hoping for a rare find A Wellesley family works to fund, promote research on son's disease. By Gail Spector, Boston Globe Download the complete Acrobat article (290kb file) 3/1/2001 - Boy's plight rallies community support Wellesley salon hosts a raffle to raise money for Sanfilippo Syndrome research. By Michelle Hillman, MetroWest Daily News Download the complete Acrobat article (268kb file) 8/22/2000 - Chipping in for a good cause Family holds golf fund-raiser for son. By Michelle Hillman, MetroWest Daily News (Also printed in the Wellesley Townsman, 8/24/2000) Download the complete Acrobat article (266kb file) 4/6/2000 - Hope For A Cure Part of tonight's episode of "ER" focused on a little girl with Sanfilippo Syndrome, a rare and fatal genetic disorder. Tonight we introduce you to a Wellesley family fighting their own battle against the deadly disease and hoping for a cure. Reported by Kim Carrigan, WHDH-TV 7 News Boston Download the complete RealPlayer video interview (3.9Mb file) Download a complete Acrobat interview transcript (348kb file) 2/8/2000 - Race against time to fight killer disease Father takes leave from work to help find cure that may save sons life. By David Caruso, MetroWest Daily News Download the complete Acrobat article (254kb file) 6/15/1999 - Racing For A Cure A local medical researcher gets personal about the fight to cure the rare, degenerative genetic disease that afflicts 8-year-old Kirby Wilson. By Mark Stroh, STYLE - Richmond's Weekly Download the complete Acrobat article (101kb file) Get RealPlayer Get Adobe Acrobat Reader |