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Saturday, May 15th is International MPS Awareness Day. Earlier in the year we asked you to watch our video, vote each day and help us to win a $10,000 grant. We did not win but we made hundreds, perhaps thousands of people aware of Sanfilippo Syndrome. Today and this week are we asking each you to take a moment out of your hectic world, watch our video again, celebrate the people in your world and remember that there so many families still reaching for a cure. New installments have been added to our Ben & His Friends section. Check out Ben's Words and Big Ben. Extraordinary Measures Movie - Our video posting on the Extraordinary Measures "Quilt" did not win, but it did help us raise awareness for Sanfilippo Syndrome. Thank you for helping to spread the word! BENefit Concert II - If you missed a great night of music at Johnny D's with Ari Hest and Mieka Pauley to benefit Ben's Dream on Thursday, October 15th, 2009 we've posted the presentation from the concert. Check it out while you listen to Ari's "Big Ben". Dream For Ben wristbands are available! Ben's big brother Noah continues his latest campaign to fund a cure for Sanfilippo Syndrome. To purchase one (or many) click on our Shop page for ordering information. Ben's Dream Logo Sweatshirts are also still available. Online Donations are accepted - We are proud to bring secure online credit card Donations through Network for Good. Updated Links page - Please see our updated Links page for new Sanfilippo Syndrome and MPS resources. We are currently planning new Events for the winter/spring of 2010 and will be posting them soon. www.bensdream.org is sponsored by |